Alex's Wish / Charity Founder
Alex’s Wish is an award-winning charity located in East Midlands with a mission to eradicate Duchenne Muscular Dystrophy. Duchenne affects 1 in every 3,500 boys born. It’s a devastating aggressive fatal muscle-wasting disease which leaves children completely paralysed by late teens.
Duchenne is caused by a mutation on the X chromosome, boys are born with the condition and it can affect any family. Boys are missing a vital protein and as a result, every single muscle in their body is destroyed. It is 100% fatal and most boys are only expected to live until their mid-twenties due to heart and respiratory complications.
Alex’s Wish founder Emma Hallam set-up the charity shortly after her son Alex was diagnosed with the condition at the age of 4. Being told not enough funding is going into research to bring about effective treatments to help delay symptoms, they set about a mission to raise £1M by 2020 which was achieved ahead of time and continues to raise funds to find a cure.
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